I got a call yesterday from the pediatric GI Doctor...Coleman's blood tests were back and he has Celiac Disease. I am in SHOCK!
I really thought that we had it figured out as stress related IBS--but I guess I was wrong.
Poor boy was so upset about the diet changes (lots of tears about no Cheez Its and pizza) and the scope that has to be done at our local Children's hospital in a few days. The Dr wanted to to do it asap to see how far the disease had progressed and asses the damage.
This kind of breaks my heart---it will be such a HUGE life change for my little boy and all of us! We really like bread and I LOVE making baked goods for my family but we have all agreed that we are in this together! I am going to have to learn to cook a whole new way. It is hard to wrap my head around this, I really don't even know where to start. It is overwhelming...but on the other hand, I am so thankful to know the cause of his pain and discomfort. What a blessing to have this knowledge so we can take better care of him and he can feel good again. Even though this feels really hard, I am trying to focus myself and him on the fact that it could be worse. Changing our diet is not a big deal in the scheme of things, right?! What a blessing that this disease can be controlled with diet.
TJ had an idea to go to the store and find Coleman GLUTEN FREE food he could get excited about to cheer him up:) It worked! He was pretty happy with the goodies we found! I did have to warn him that stuff like Fruity Pebbles and Gushers are a special treat and will not be staples in this new diet--ha ha!:) . And my sweet hubby called around and found a local pizza place that makes Gluten Free pizza--Thank you Lupi's--phew!
If anyone has experience with Celiac Disease or Gluten Free diet, I would be so grateful for any ideas or recommendations that you could give us. We are so clueless at this point, any advice would be greatly appreciated! Thank you:)